The satisfaction level of bereaved caregivers with the care received during the end-of-life, a private university in Kajang

Wong, Jia Yan (2024) The satisfaction level of bereaved caregivers with the care received during the end-of-life, a private university in Kajang. Final Year Project, UTAR.

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Abstract

BACKGROUND: End-of-life care, a vital component of palliative care, plays a crucial role for individuals with terminal illnesses and their families. Despite growing demand, the quality of end-of-life care in Malaysian hospitals remains uncertain. This underscores the importance of exploring bereaved caregivers' perspectives to identify and address any gaps in care. OBJECTIVES: To assess the aspects of care and the overall satisfaction level of the bereaved caregivers with the care received during the end-of-life. METHODOLOGY: A cross-sectional survey was conducted among 107 participants from 22nd July to 20th August 2024 in a private university in Kajang. Purposive sampling method was used to enlist participants who fulfil the inclusion criteria. Data was collected using a self-administered questionnaire through face-to-face and online approach. Data analysis was performed using IBM SPSS version 29.0. RESULTS: More than half of the participants (58.7%) expressed dissatisfaction with the overall care received during the end-of-life. Pearson’s correlation test revealed a statistically significant negative correlation between the domains of end-of-life care and overall satisfaction. Chi-square test showed no significant association between sociodemographic characteristics (participants’ ethnicity, education level, religion and religiosity) and overall satisfaction of bereaved caregivers with care received during the end-of-life. CONCLUSION: The study highlights significant gaps in end-of-life care within Malaysian hospitals, particularly in addressing unmet patient and family needs. To bridge these gaps, further specialized training for healthcare providers is essential. This upskilling would not only improve the quality of care but also enhance satisfaction among bereaved caregivers. KEYWORDS: end-of-life care, overall satisfaction level, bereaved caregivers

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